Introduction To Our Chronic Life

Hello world!

My name is Jessica and I am here to take you through a journey of rare discovery. That amazing detection of genetic disorders (note the sarcasm).... About 6 years ago I started a journey no one ever wants to start. I became extremely sick to the point of not being able to hold up my own weight, couldn't grip things, my speech and memory were affected negatively as well as immense pain I wouldn't wish on my worst enemy. That was just the beginning of the journey we now call our lives. It may have started with me but, much to my dismay it did not end with my struggles. If you haven't figured it out, this blog is all about living with chronic illness and raising children with the same problems. I will speak from my point of view on how life truly is(which if you live this life you know that is no easy feat). I will also get opinions from other people, parents, professionals and anyone else that can give a true revelation in this way of life. This is not for the faint of heart and can be hard to discuss due to the nature of the hardships people in this life of chronic illness endure. Join me in self discovery and helping others to have a true understanding of this life no one chose.

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The Hardest Part......

Being a parent can be hard(to say the least). When they're young the questions come a little bit easier. Why is the grass green or the sky blue? How do I brush my teeth? How do I tie my shoes? I know with age the questions get harder. Why does that boy like her instead of me? What kind of deodorant do I use? Why do I get pimples? Why do I get bullied? How can I make more friends? But how many parents can say their children ask "Why do I have to suffer? Why aren't there any answers for me? Why can't I just be a "normal" kid?" As a parent one of the hardest things to watch is your child suffer and not have any answers. These are questions my daughter and son both ask me weekly. How do I answer these aching questions, these torturous questions? She sits in pain everyday not able to function like a 13 year old, she just wants to go to school, run track, and play tag without her body telling her "NO, YOU CAN'T!" How do I comfor...

A Day in the Life....

Our day begins when I open my eyes, the sensation of being ill already settled into my body. My hands are tingling, my vision in my left eye is blurred to the point of not recognizing anything out of it, my shoulder feels like I crushed it in my sleep, I wait for these body parts to work correctly so I can get out of bed and start moving. As I sit up, the weight of gravity is felt in every joint, bone and muscle, I want to lay here and not move but, I know it only makes the pain worse. I know that if I'm still for too long the pain becomes excruciating. I pull myself up and start my day. We have 2 dogs and 2 cats, so I love on them and tell them good morning! They talk(yes, my animals are sassy and talk back) and love on me, which makes my morning a happy one. I wait to see if I can eat because, most of the time my stomach pains are so severe I feel as if I'm starving to the point of vomiting but, if I wait too long I'll start to get dizzy and my stom...

The Complexity of Happiness

I'm going to take a break from talking about illness and just write about something simple yet so complex....... Happiness. Life is truly hard, even for individuals who do not live as we do, it truly is a struggle, day to day, week to week, sometimes even minute to minute. So in the struggles of everyday life where do you find happiness? From philosophers to small memes, people have spoken of "The elusive happiness" as if it is one of the hardest things to find. You look at social media and you see people "in their happiness" but that's not always reality. That is merely a flash of their hoping for happiness. This is something I've contemplated especially for the last few days. This year has been one of the most trying and miserable years. I think everyone feels that way, unfortunately. This year, for some odd reason, it feels harder than most. So, not only am I bringing this question to your attention I'm also bringing it to mine...

Empowered by Illness

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