My daughter and I had an argument yesterday, when I felt defeated I came to a realization that we tend to hide who we are when it comes to our illnesses. As she explained to me that she feels so lonely, I thought at first it is because she's 13 we go through these things, I remember feeling that way as well when I was her age but, I prodded, we argued and I had a sudden epiphany.... She feels lonely because of these illnesses..... We are limited to how much we're "allowed" to share with others for one reason or another. Sometimes it makes people uncomfortable, sometimes they look at us weirdly as if what we're saying is in a completely different language, they look at us like it's all fake, they aren't sympathetic, the list goes on and on. For me, I've learned that most people can only care as far as they can see, when it's out of mind there is no empathy or sympathy because they don't live it. This is still a daily struggle for me b...
The struggle of living with genetic disorders which cause chronic illness is unbearable but, imagine you not only have these illnesses you also raise children with them..... My blog delves into the lives so many of us live but, none speak in detail about. This is a safe space for those who need refuge and crave knowledge of the unknown of our invisible illnesses. Join me in this journey of heartbreak, love and finding ourselves along the broken road.